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Independence for Victoria: specialist standing frame

Victoria needs a specialist standing frame that the health system won't fund; the cost is $7,100.

🇺🇸 California, United States2,654 views
Victoria P. Hicks
Email verified
Los Angeles
I live with a rare neuromuscular condition. My occupational therapist at the Los Angeles Rehabilitation Centre has assessed me and recommended a specialist standing frame. The public scheme doesn't cover it, and the quote from the supplier is $7,100. My current equipment is 10 years old and keeps breaking, which has confined me to home for 3 weeks. With the right equipment I could attend work interviews. It would change my everyday life and my ability to work from home. We've applied to two charities already and received small contributions; this campaign covers the rest. Funds go toward the equipment, delivery, fitting and a year of servicing. Where the $7,100 goes: • specialist standing frame: $6,500 • Fitting and training sessions: $160 • Delivery and set-up: $165 • First-year servicing plan: $275 Even a small gift gets used right away and I'll thank you myself.

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  • Saanvi C. Tandon 🇮🇳 · $5

    “Get well soon! - Jabalpur”

  • Mykola Andriy Lysenko 🇺🇦 · $10

    “Praying for you. Saw your post and had to give. - Dnipro”

  • Fatima Asma Tawfik 🇪🇬 · $10

    “Best of luck. My neighbor told me about this one. - Cairo”

  • Daniel Duncan 🇺🇸 · $100

    “Stay strong. Shared with friends too. - Lansing”

  • Halyna Zlata Medvedev 🇺🇦 · $48
  • Ethan D. Banks 🇨🇦 · $76.50
  • Ratna Kartika Salim 🇮🇩 · $100
  • Oleg Bohdan Mikhailov 🇺🇦 · $41

    “I'm in Zaporizhzhia, thinking of you. - Zaporizhzhia”

  • Liliana D. Hoffman 🇺🇸 · $20
  • Jyoti P. Patel 🇮🇳 · $50

    “Good luck. My sister told me about this one. - Pune”

  • Vanessa Dizon 🇵🇭 · $5

    “Hope it all works out. Please keep us posted. - Mandaue”

  • Emeka Ebuka Ogunleye 🇳🇬 · $20
  • Prince Raymond Appiah 🇬🇭 · $100

    “Hope things get better. Been where you're, it gets better. - Takoradi”

  • Ebo Nana Frimpong 🇬🇭 · $55
  • Stephanie B. Caldwell 🇺🇸 · $25
  • Patcharee Napat Laohakul 🇹🇭 · $10
  • Iulian Ionuț Popescu 🇷🇴 · $20
  • Fatima Nassar 🇪🇸 · $67.50
  • Rémi Yves Marchal 🇫🇷 · $100
  • Amna Hanif 🇵🇰 · $20

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  • Rylee G. DunnPhoto verified

    you're not alone, Victoria. Gave what I could, wish it was more. We're a small family in Arlington but we're thinking of you. Love from Arlington.

    • how is Victoria doing now?

      • Good luck, Victoria. Looking forward to the next update. Don't be hard on yourself for asking.

        • What exactly is the $7,100 for?

          • Sure. The biggest one is specialist standing frame, $6,500. The rest is in the list at the bottom of the post and I'll upload receipts as I pay each one. Ask me anything else.

        • Looking forward to the next update. Greetings from Obuasi.

          • You're not alone. Hope you get there. Greetings from Mar del Plata.

            • Hope things get better soon. Hope you get there. My late mom used to say help given quietly counts double. Take care.

              • Take care, Victoria. Everyone deserves a bit of help sometimes. Please keep us posted

                • is there anything that isn't money that would help Victoria?

                  • Sharing the link is the biggest thing. And if you know anything about specialist standing frame, advice is welcome too. It helps to be asked.

                • Sending good thoughts, Victoria. Looking forward to the next update. My husband and I read this together. Love from Nairobi

                  • It takes guts to ask. Well done. After 7 years in farming I know how hard it's to ask for anything.

                    • Leonardo N. QuirogaPhoto verified

                      You're not alone. Shared this with my family. Don't be hard on yourself for asking. Greetings from Allentown

                      • Rooting for you, Victoria. Hope the treatment goes smoothly and recovery is quick

                        • Rooting for you, Victoria. Shared this with my family. Put this on a community board in Novosibirsk this morning. Love from Novosibirsk.

                          • Clara WalshPhoto verified

                            Rooting for you. I've been in a tough spot myself and it does get easier. Please keep us posted.

                            • Hope you get there. I hope January is when things finally get easier. Take care.

                              • Good luck, Victoria. It takes guts to ask. Well done. God bless.

                                • Good luck, Victoria. Everyone deserves a bit of help sometimes.

                                  • this could happen to any of us. After 23 years in social work I know how hard it's to ask for anything. All the best.

                                    $1,222.50 raised of $7,100

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