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Standing with Santiago: acute lymphoblastic leukemia treatment costs

Santiago is facing acute lymphoblastic leukemia and the cost of treatment, travel and care at home is far beyond what the family can cover.

Anywhere in the world5,815 views
Santiago Nguyen
Email verifiedPhoto verified
Parramatta
In September I was diagnosed with acute lymphoblastic leukemia. My oncology team at the Parramatta Oncology Institute has planned 8 rounds of treatment, and the first starts in November. I was told to expect about 4 weeks away from work. I never imagined I'd be writing something like this. I'm 56, I worked as a bakery worker until September, and I have been the main earner for my household. Treatment is covered only in part. Medication that isn't on the approved list, transport to the Parramatta Oncology Institute 5 times a week, and the income I have lost add up quickly. My family is doing everything they can, but we've already sold what we could and are borrowing for groceries. Funds will be used only for treatment, medication, transport to appointments and essential living costs during treatment. Where the $9,400 goes: • Chemotherapy and medication not covered: $6,750 • Scans and lab work: $1,550 • Transport to the Parramatta Oncology Institute: $1,100 Thank you so much.
#cancer#treatment#family#medical

Updates from Santiago

  1. Quick update: $2,903 raised so far (31%). I made the first payment toward transport to the Parramatta Oncology Institute. Receipts coming as soon as I have them.

  2. We're at 21% thanks to 34 of you. we've started the first stage. More news soon.

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  • Kimani Mukasa Musyoka

    Rooting for you. Shared it with a few friends. Greetings from Mumbai.

    • Sandeep K. MittalQuestion

      What's already covered and what's the $9,400 for?

      • Santiago NguyenOwnerAnswerPhoto verified

        Everything on the list is an amount I've been quoted or invoiced. chemotherapy and medication not covered comes first ($6,750) and I'll update the page as each thing gets paid. Thanks, that means a lot.

    • Simiyu Mwende Opio

      So sorry you're going through this, Santiago. I've been in a tough spot myself and it does get easier.

      • Saoirse Graham

        Thinking of you and your family. Hope this works out for you. My father had a similar thing happen so this one hit home. Take care.

        • Sameer C. Kelkar

          Sending strength. Hope the doctors have good news. Put this on a community board in Gazipur this morning.

          • Esra Gizem Kaya

            Wishing you peace. Your post was clear and honest!

            • Kirit N. Dave

              praying for you, Santiago. Everyone deserves a bit of help sometimes

              • Januka Bista

                Sending strength, Santiago. Hope you get there.

                • Wojciech Kamil Dąbrowski

                  Shared it with a few friends. We had a similar scare last year, I know what it feels like. Love from Uppsala

                  $5,209.50 raised of $9,400

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