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Second opinion needed: childhood-onset epilepsy, Toronto

An oncologist willing to review Lin's reports could help the family decide on treatment for childhood-onset epilepsy.

Anywhere in the world673 views
Mei Zhen Zhou
Email verifiedAddress verified
Toronto
Lin was diagnosed with childhood-onset epilepsy in September. The local team has recommended an experimental drug. We understand it's an important decision, and we'd like to be sure. We're asking if an oncologist - anywhere in the world - would be willing to review Lin's reports and give a short opinion (a call of 20 minutes or a written summary). We'd gladly pay for any cost to your practice that we can afford. We have scans, lab reports and the doctor's notes ready to share securely. We understand that you can't give formal medical advice without an examination, and we're simply looking for guidance on questions to ask and options to explore. Thanks for even thinking about it. If you can't give, please share this page. It does reach people.
effort
20-minute call
format
Online or by phone
skills
medical specialist, willingness to review records

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  • Markus Thomas MeierAddress verified

    Thinking of you, Mei. Looking forward to the next update. Don't lose heart. A few weeks ago I was in a hole too and it changed faster than I expected. Love from Saint-Étienne

    • hang in there, Mei. Shared it with a few friends. Take care.

      • rooting for you. Wishing Lin a smooth procedure and a full recovery. I told my book club about it and three of them are giving too. Thinking of Toronto.

        • thinking of you and your family. This could happen to any of us. Thinking of Toronto.

          • Hang in there. This could happen to any of us. Please keep us posted. Greetings from Kampala.

            • Lungile R. NgcoboPhoto verified

              Sending good thoughts, Mei. Look after yourselves too, caregivers need rest. We had a similar scare last year, I know what it feels like. Love from Fort Collins.

              • Sending good thoughts. Get well soon. Greetings from Laval.

                • You're not alone, Mei. I hope things turn around soon.

                  • Best of luck, Mei. Hope the doctors have good news. Sent it to 22 people at work. Take care.

                    • sending love. Get well soon. Don't lose heart. A few weeks ago I was in a hole too and it changed faster than I expected. Love from Cincinnati

                      • Take care, Mei. Hope this works out for you. Don't lose heart. A few weeks ago I was in a hole too and it changed faster than I expected. Thinking of Toronto.

                        • Your post was clear and honest. My neighbor in Arusha donated after I showed her your page. God bless.

                          • so sorry you're going through this, Mei. I hope things turn around soon. Thinking of Toronto.

                            • thanks for sharing this, Mei. Look after yourselves too, caregivers need rest. Please keep us posted. Take care.

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