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Second opinion needed: childhood-onset epilepsy, Parma

A gastroenterologist willing to review Alice's reports could help the family decide on treatment for childhood-onset epilepsy.

Anywhere in the world1,064 views
Gennaro Tommaso Santoro
Email verified
Parma
Alice was diagnosed with childhood-onset epilepsy in July. The local team has recommended an experimental drug. We understand it's an important decision, and we'd like to be sure. We're asking if a gastroenterologist - anywhere in the world - would be willing to review Alice's reports and give a short opinion (a call of 20 minutes or a written summary). We'd gladly pay for any cost to your practice that we can afford. We have scans, lab reports and the doctor's notes ready to share securely. We understand that you can't give formal medical advice without an examination, and we're simply looking for guidance on questions to ask and options to explore. Thanks for even thinking about it. If you can't give, please share this page. It does reach people.
effort
20-minute call
format
Online or by phone
skills
medical specialist, willingness to review records

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People who offered to help

  • Kiptoo Tumusiime Njoroge 🇰🇪

    I live about 12 km from Parma. I can help at the weekend, tell me what you need. Happy to chat first.

  • Kamal Yasir Habib 🇸🇦

    i live about 7 km from Parma. I can help at the weekend, tell me what you need Free this month.

  • Snehal N. Parmar 🇮🇳

    I live about 8 km from Parma. I can help at the weekend, tell me what you need.

  • Gerald Ayala 🇺🇸

    i live about 12 km from Parma. I can help at the weekend, tell me what you need.

  • Hương Thanh Huynh 🇺🇸 Photo verified

    I live about 11 km from Parma. I can help at the weekend, tell me what you need.

  • Travis D. Davis 🇬🇧

    I live about 12 km from Parma. I can help at the weekend, tell me what you need. Can bring a friend.

Reviews

3.4(8 reviews)

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  • Theresa Adwoa Gyamfi🇬🇭Verified helper
    Delivered on promises

    The support I received was beyond what I expected. Not only did they help with the immediate need, but they also provided guidance for long-term solutions. I'm forever grateful.

  • Volkan Selim Koç🇹🇷Verified donor
    Made a real difference

    Couldn't have asked for better support. They listened carefully, understood my situation deeply, and provided thoughtful advice that actually worked. Thank you so much.

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    Really cared about my situation

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    Truly grateful for the support

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    Restored my faith in humanity

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    Great help in a difficult time

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  • Thinking of you, Gennaro. Wishing Alice a smooth procedure and a full recovery. My husband and I read this together.

    • You're not alone. Get well soon. My late mom used to say help given quietly counts double.

      • Sending strength. Looking forward to the next update. I told my book club about it and three of them are giving too

        • Praying for you, Gennaro. I work in healthcare and wanted you to know people are on your side. God bless.

          • I've been in a tough spot myself and it does get easier. Don't lose heart. A few weeks ago I was in a hole too and it changed faster than I expected. Love from Nashville

            • You're not alone. Look after yourselves too, caregivers need rest. I went through something like this 9 years ago and strangers helped me out. Take care.

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