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ConsultationMedical & health

Second opinion needed: childhood-onset epilepsy, Manukau

We're asking for a short, free consultation with a neurologist on Kylie's diagnosis.

Anywhere in the world361 views
Asher D. Nguyen
Email verified
Manukau
Kylie was diagnosed with childhood-onset epilepsy in May. The local team has recommended an experimental drug. We understand it's an important decision, and we'd like to be sure. We're asking if a neurologist - anywhere in the world - would be willing to review Kylie's reports and give a short opinion (a call of 20 minutes or a written summary). We'd gladly pay for any cost to your practice that we can afford. We have scans, lab reports and the doctor's notes ready to share securely. We understand that you can't give formal medical advice without an examination, and we're simply looking for guidance on questions to ask and options to explore. Thanks for even thinking about it. I'll keep this page updated with receipts as things happen.
effort
20-minute call
format
Online or by phone
skills
medical specialist, willingness to review records
#second-opinion#medical#consultation

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People who offered to help

  • Ruslan Oleg Ponomarenko 🇺🇦

    I live about 13 km from Manukau. I can help at the weekend, tell me what you need

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  • Carolina K. Muñoz

    Best of luck, Asher. It takes guts to ask. Well done. My husband and I read this together. God bless

    • Akoth Akinyi Nabwire

      Good luck, Asher. Shared this with my family. God bless.

      • Laiba Tayyaba Chaudhry

        Hang in there. Look after yourselves too, caregivers need rest. Love from Hyderabad!

        • Clémence Léa Garcia

          Sending love. Everyone deserves a bit of help sometimes. Put this on a community board in Mysuru this morning. Thinking of Manukau

          • Sandeep M. Arora

            Take care, Asher. Hope this works out for you. God bless.

            • René Benoit

              Wishing you peace, Asher. Hope the doctors have good news. I went through something like this 3 years ago and strangers helped me out.

              • Lanre Bello Okafor

                Best of luck, Asher. Shared this with my family. I have a 15 year old who wants to send good wishes too. All the best

                • Sara Saba Haile

                  thanks for sharing this, Asher. Hope you get there. Take care

                  • Bhavna F. Verma

                    Best of luck, Asher. Your post was clear and honest. Put this on a community board in Ciudad de México this morning

                    • Gerardo P. Zamora

                      Wishing you peace. Hope this works out for you. Wish I lived closer to Los Angeles so I could bring a meal. Love from Laredo

                      • Henok Hailu Bekele

                        hope it all works out, Asher. Looking forward to the next update. I went through something like this 10 years ago and strangers helped me out. God bless

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