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Second opinion needed: childhood-onset epilepsy, Jakarta Barat

We're asking for a short, free consultation with an oncologist on Rani's diagnosis.

🇮🇩 Indonesia1,113 views
Rudi Oky Santoso
Email verified
Jakarta Barat
Rani was diagnosed with childhood-onset epilepsy in April. The local team has recommended a long course of medication. We understand it's an important decision, and we'd like to be sure. We're asking if an oncologist - anywhere in the world - would be willing to review Rani's reports and give a short opinion (a call of 20 minutes or a written summary). We'd gladly pay for any cost to your practice that we can afford. We have scans, lab reports and the doctor's notes ready to share securely. We understand that you can't give formal medical advice without an examination, and we're simply looking for guidance on questions to ask and options to explore. Thanks for even thinking about it. Thanks for being kind about this.
effort
20-minute call
format
Online or by phone
skills
medical specialist, willingness to review records

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  • Praying for you, Rudi. I work in healthcare and wanted you to know people are on your side. I told my book club about it and three of them are giving too.

    • Sending good thoughts. Shared this with my family. Sent it to 28 people at work.

      • Thinking of you and your family. Wishing Rani a smooth procedure and a full recovery. I'll check back for the next update. Greetings from Gqeberha.

        • You're not alone. I've been in a tough spot myself and it does get easier. Greetings from Bari

          • Melanie S. VegaID verifiedPhoto verified

            Praying for you, Rudi. This could happen to any of us. My daughter saw me on my phone and now she wants to give her pocket money.

            • looking forward to the next update. I went through something like this 9 years ago and strangers helped me out. All the best

              • it takes guts to ask. Well done. Love from Petrópolis

                • thanks for sharing this, Rudi. Hope the treatment goes smoothly and recovery is quick. Please keep us posted. Love from Fukuoka.

                  • Get well soon. I hope July is when things finally get easier.

                    • Wishing you peace, Rudi. I've been in a tough spot myself and it does get easier. Don't lose heart. A few weeks ago I was in a hole too and it changed faster than I expected. Love from Rennes.

                      • Good luck. Get well soon. My late mom used to say help given quietly counts double. All the best.

                        • I hope things turn around soon. Put this on a community board in Dodoma this morning.

                          • You're not alone, Rudi. I work in healthcare and wanted you to know people are on your side. After 12 years in nursing I know how hard it's to ask for anything. Thinking of Jakarta Barat.

                            • Hang in there, Rudi. Your post was clear and honest. Wish I lived closer to Strasbourg so I could bring a meal.

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