Second opinion needed: childhood-onset epilepsy, Grenoble

Jacques was diagnosed with childhood-onset epilepsy in January. The local team has recommended an experimental drug. We understand it's an important decision, and we'd like to be sure. We're asking if a rheumatologist - anywhere in the world - would be willing to review Jacques's reports and give a short opinion (a call of 20 minutes or a written summary). We'd gladly pay for any cost to your practice that we can afford. We have scans, lab reports and the doctor's notes ready to share securely. We understand that you can't give formal medical advice without an examination, and we're simply looking for guidance on questions to ask and options to explore. Thanks for even thinking about it. I'll keep this page updated with receipts as things happen.